...some call It God. Sometimes I do, too, but mostly I do not bother with a name. For expedience, I will say God, but that does not mean "the Father" to me. It simply means whatever it is that we find when there are no people, there is no money, when we are utterly alone, but search and find some strength that seems larger than our own.
In my adult life there were two times between 28 and 42 when I was acutely aware that I was calling on something that did not feel like only me. The first was after I'd been as far from any church as I could be for about more than a decade. Like so many children of the sixties, free love and "finding myself" were my religion from college through most of my twenties. At least this is what I told myself. When I fell in love with Matt, I knew that I was running from some demon I could not name. When he used me and threw me away, I cycled into self-destruction and running like hell from those dark places I could not yet quite touch, could not bear seeing. My dreams were peopled by a faceless man who touched. A laugh that was familiar, but which disappeared just as the face began to come into focus and I would awaken. I was not yet ready to remember my brother. Or my grandfather. Or those times I'd worked so hard to bury beneath ten tons of minutely detailed memory of everything but...
A funny thing happened one day when I was 27. It was February. And it was six years before I remembered anything of the abuse of my childhood. That fact is significant.
Chaos: My Family's Special Friend
Ten days before this my father had gall bladder surgery, in the days before lasers. While he was in surgery, I got a call from brother Jim's wife, Sue, that he had been in a severe car crash with another woman. He was in a coma, not expected to live. She was in shock and angry, but she was clear in her message to me. "He's a bastard but I'm not wanting him to die, and I will stick with him while he recovers. I'm his wife. He's my kids' dad. I just--"
"Sue, no one can or should ask for more. I think it's good for you to do this much. You must be in hell."
I found out that she had no money for bills, let alone his hospital stay. Their insurance was minimal, through the car insurance mostly. I went to my mother's but, of course, she was drunk and incoherent, so I called for the siblings. We split things up: Jean Ellen got a loan from her credit union, Jack would drive to New Hampshire to see to business there, and I would deal with telling Mom, when she was conscious, about Jim and tell Dad.
Only Dad had complications and went directly to ICU. It was fifty-fifty whether he would make it, but I knew I had to tell him. He was not in a coma. Mom, however, was semi-comatose throughout. How nice for her. I piled her into the car, propped her in the corner of Dad's cubicle and told him. It was only the second time I watched him cry. Then he said a curious thing, "If it makes me a bad father, so be it, but on some level, I almost wish he would just go. Oh, God, what kind of man am I?"
Something back in the recesses of the dark in me said, "HUMAN." I shoved the thought out, however, and said, "Well, Dad, this really isn't the way for him to go out, for Sue's sake. And sometimes near death experiences change people."
This seemed to help him.
It was five days before Daddy was put in his own room. He had spiked a terrible fever and was still on massive antibiotics, still with a fever over 101. Jim was still in his coma. On the sixth day he came out of his coma, but he, too, had a massive infection from a wound on his leg. They were now hoping to save his foot.
Celebration and Black Ice
In the meantime, I had been awaiting news from B. U., about my application to the Graduate School of Education, because I wanted to get a terminal degree in Adult Education. Good things come all at once...
I got a call from Jack that Jim would make it and keep his foot, then a call from the hospital that Dad would be okay, and a letter of acceptance from B.U. the next morning, I could not wait to go to the hospital with all the news. It was February, warm and foggy. I hit the top stair to the driveway, and a patch of black ice. I fell down six stairs on my back, and when I hit bottom, I knew I was in trouble.
I made it to the hospital to tell Dad the good news, leaving out graduate school. I went to the ER from his room.
I was scheduled for an emergency myelogram. It was 1980, just before MRI's. Two ruptured disks and no disk at all at the base of my spine. I knew I'd had problems, but this finished me off. I was immediately put into a body cast. As luck would have it, the ER doctor that day was my orthopedic surgeon and he said, "My dear, you will need surgery. This finished off our work I'm afraid." I had had two months of PT and was exercising regularly up to this point.
Fighting to Live, Praying to Walk
Jim made it; his marriage didn't. Dad made it; Mom drank to celebrate. Business as usual.
Except for me. The six months between the fall and my first surgery resembled my clinging to the side of a cliff, more than anything.
It was a terrifyingly dark time. It was more a dance to escape my own past, the memories that haunted me, but which I was not prepared to face. When Jim was nearly dead, I was horrified at my own initial thought, 'Good. Die, damn you.' So I ran to any man who looked my way, in a frenzy of dangerous sexual behavior.
I was in a body cast for a month and lost weight. I kept losing weight because I could not keep food down. I thought it was stress; I was mistaken. The thinner I got, naturally, the more other women told me how great I looked. I did not. You could see every rib and every vertebrae. I could pour water into the gully of my collar bone. I photographed great, though, because of the gauntness of my face. I did not miss work; I did not miss rehearsals for a play. I pretended that I would be fine.
By June, my legs began to collapse and the headaches started. Every day, on my way into Hartford, I'd pull off to the side to quickly vomit, then go to work. Once there, I'd take the migraine medication and try not to pass out. Sometimes my legs would collapse in the stacks, but I was so expert at pulling myself up onto a book truck or the shelves that sometimes no one registered I'd fallen.
I had had to turn down the opportunity to go to B.U. Even I had to face that particular truth; I never told my family that I was even accepted. Everyone was so busy with Dad and Jim, with Jim's divorce, that I did not care to worry them, and what was the point of talking about a program I could no longer join?
So I buried my pain in men. For an hour, maybe two, I would be beautiful and wanted, then I would leave. I did not care, I thought, whether I lived or died.
Facing Fear, Finding a Toe Hold
Until I saw the doctor and told him about my legs. He looked at me hard and said, "For how long has this been happening?"
"A month, maybe two... I am not sure." I looked at the floor. It was late July.
While I was there, he scheduled a myelogram and surgery. The disk had fragmented into the spinal canal and pieces were impinging on my spinal cord and the nerve root, both. I was scheduled for emergency surgery two weeks from that day.
I was told that I could die or be paralyzed from what was happening.
All I registered that day was, "What do you know? I don't want to die after all. I really don't." My body was numb, but at last my mind and my heart had come to life. For the first time in more than six months, I cried.
What followed in the next five years were eight back operations that entailed seven months of hospitalizations, nine months in various body casts, 37 blood transfusions (before AIDS testing), traction, seven months of physical therapy; I also got married and was instant mother to two half-grown children. I had to be brought back--whatever that means--during or after surgery eleven times. And I had ten days in a Striker bed. You would think it would all be a blur, but it is not. I remember details of almost every stay, and what was done. I remember the smells, the sounds, the nurses, the pain.
But that first operation was the most dangerous. It nearly killed me, but when I finally left the hospital three weeks later, I knew that this back of mine had saved my life. I had something tangible to fight, and learned that I wanted to fight. It was not until three surgeries later, however, that I understood what it really was to feel alone, and that I found that there was something beyond my stubbornness on which I could draw,
And it was then that at last, I rediscovered Grace in my life.
*****
Off for vacation for a few days. Have a wonderful weekend, one and all.
29 comments:
I know you won't take it the wrong way when I tell you that sometimes your writing makes me drink. This one was one of those rides. I'm a bit breathless.
Oh, well. Best have the bottle handy for Part II, but there will be a breather. The thing is, Bruce, I have never really written about those four years. I have never written about being accepted at BU. My sister died not knowing I had been.
I know it's raw, this writing about the build up to all those surgeries. As I said, this is the first time I have tried.
There may even be a part three--but that's why I sometimes wonder what the hell my book should be, or whether there is more than one in here.
All I know, Bruce, is you keep coming back to read. So I'm going to take it as a compliment.
You are powerless to get rid of me!
I've been reluctant to talk about when I used to sing at a piano bar...Something about the darkness allowed me to sing all out. I thought I was invisible. Apparently, I was not.
Maybe there is more than one book in me. We'll see. Gotta start with ONE, however, and finish.
My best friend and I are headed for central Mass. A spot from where we can run up to the Montague Bookmill--used bookstore where local artists, writers, and musicians hang. We are checking out towns to live in three to five years.
Living in the land of malls is a tad sterile, too often. I'm taking my laptop to work on Part II, and my assignment for class. And my book. No art supplies this time, though. Mostly we will check out small towns around.
Any suggestions out there among any of you who know Massachussetts well?
PS
Bruce, well good. Not that I had the slightest desire to try.
wow, this is raw... and i am deeply aware of a jump in my throat.
i hope you have a lovely vacation my friend.
I said I'm going with my best friend, which is deceptive... I have a few who are best friends. Why I felt this to be important's beyond me.
I know it's raw, Kamana. I'm not sure why I have never been able to write about those years with the detail with which I could write about my family. But now I want to, and it's partly because I know it is a story that too many have lived, largely alone. Because ultimately we ARE alone in our bodies. Families may, if we are lucky, visit a lot, but there is still more time we must experience and endure alone--and often enough, it is better that way.
Except that, once we get out, there is not a lot of recognition of the nightmare. There are expectations for us to be "fine now." My ex used to treat me, when I got home, as if I'd been on vacation and HE could finally not have to deal with all the "kid stuff."
I even used to joke that I couldn't afford Hawaii, so I took vacations in the hospital.
So. We'll see where it goes with THIS. Leave childhood alone and hit the hospital years.
Thank you Kamana, as always, for your support. I wish I could say that the next one or two entries won't be raw, but I am afraid they may be.
In the meantime, I WILL have a good vacation, my friend. Mini or not, it will be fun. I just wish one particular other best friend could be with us! Perhaps another time.
Reading and breathless - have a good time away,Lois
I don't know what to say...the things I am feeling right now can't be put into words...
I'm thanking people for being breathless and overwhelmed... I hope that this means that you are getting something from the reading.
Something that is NOT poor Jeannette. I'm not poor Jeannette. I'm kind of a happy person in fact. Strange, yup. Dramatic, overly. But more optimistic than not, despite those three years before I finally sold my house. Those were rough, rough years on every front, but that's part of life.
My blog's an exploration for me. I mine subjects I did not, perhaps, ever try to write about for other eyes to see.
While the next blog or two may be a bit raw, please know that even though my back is not fine and never will be, that the woman who encompasses that spine truly is.
I have my times when I am nuts and during those times I do things I regret, absolutely. Perfect is not something I will attain.
But I look FORWARD to my life and these days I feel new and excited about so much. A bit of the entrepreneurial spirit is in me.
So Lois and Joanne, I'm hoping that you don't feel sorry for me. I did enough of that all by myself for too long!
Thank you both for reading and following my blog.
It must have taken some courage to write that, Jeannette. Not the sharing so much as the re-living. I suspect one can't ever write about experiences like those without doing some re-living each time. It never occurred to think of you as 'poor' Jeannette. Only someone who was strong and had (now) high self-esteem could gave written it. Well done on all counts.
All of those back surgeries were done by ortho's and not neurosurgeons? No way on god's polluted earth would I let an orthopedic surgeon go anywhere near my spine. All the other shit I've broken no problem but the spine, where all the nerve bundles start aww hell no Jeannette. I am just coming off my fifth spinal surgery and depending on how things look possibly another. Neurosurgeons, good ones anyway, don't use bars and a lot of hardware and I am pretty sure they don't know what a cast is.
Not to sound unsympathetic about the dysfunction in the family but I could have pretty much written the same thing...but then I had my epiphenomenon moments that saved my will to exist and be. I remember everything but to be honest, fuck it, can't change anything behind me but I have a few pages left to write yet so now because there has been a lot of thought and forgiveness, these last pages of the book may just turn out all right.
MA...I personally like the Concord area, been many times there and New Bedford which is a bit seedy in some parts and not bad in others but definitely urbanized in it's feel.
Be safe on your trip, enjoy and relax. See you at part II.
As it happens, Walking Man, a neurosurgeon was there for every operation I had, and for the last six, there was a vascular surgeon as well. Sometimes, back in 1980, hardware and casts were necessary. It was in the days before microsurgery or laser surgery. In the days of discograms and myelograms, not MRIs. CAT scans were pretty new when I started.
The first neurosurgeon I had was considered the best in Connecticut, which meant he was none to shabby. He tried to get as many fragments as possible from out of the spinal canal.
Anyway, every person's back situation may be different, and the practices for dealing with neurological damage have changed through the years. I had cutting edge PT eventually, and that TRULY helped me.
I appreciate that you say things as you see them, WM. I hear you about forgiveness. I've forgiven them all, except my brother Jim. Well. I am not sure what the word is. I accept that he is/was one sick puppy. Still is, if he is alive, I am sure. The most I can manage is not actively wish him harm. I've let go of the rest. I do believe in the idea that there needs to be the other person seeking forgiveness and making amends for it truly to happen.
I may sometimes get my feathers ruffled at some things you say, but I would never want you NOT to say what you want to say. I've always had a little bit of trouble with other people seeming to judge the surgeries I had. It's hard; I cannot change things. I knew what I knew and did my homework the best I knew how in 1980, with no support from anyone about it all. I'm here. I'm still walking. I figure that's pretty darned great.
Okay. I am now about to nap on my comfy bed with its 8 million extra pillows!
Jette,
As always told with your heart on your sleeve and with excellent writing. Impatiently waiting for chapter 2.
Excellent post.
I like your observations on grace and hope to seem more of them.
You've probably heard it again and again...what doesn't kill you, makes you stronger. In your case, so true!
It's incredible what one human being can go through and survive both physically and mentally. Some people drop a glass and fall apart...your whole world crashed down around you and now, we who get to read your beautiful writing, are the lucky ones.
Thanks for sharing such intense memories.
Raw and powerful writing. Goes straight to the solar plexus. So it is not "poor" Jeannette I am feeling but Brave Jeanette. Brava, Jeannette! Write on...it is your strength (in more ways than one). Thank you for sharing.
I'm with you as you explore what drives you to share such remembrances of pain and the path to "GOD."
I toy with the idea of writing about "GOD" on my blog, but it gets stuck in my throatbrain and sounds like glog or some other fantasmagorgod that I'm making up. Grace is such a much better word.
Looking forward to the next installment.
smiles...i am glad you have found the strength to write it out...this is as many have said raw and powerful...and that you have found grace...it will get us through much...wonderfully told ma'am...def got me.
have a great time on that vacation...and enjoy yourself...
I love the way you write, and I enjoy reading your blog.
www.modernworld4.blogspot.com
I sometimes think about what gets people out of bed in the morning. Usually I am thinking about the ordinary we face, day after day. Alone inside our selves. In some way your story, even in its gutwrenching extremity and intensity, is still the same story-question every person who lives into adulthood faces: why do I survive? Why do I want to? That you tasted Grace at the point you did really blows me away, because I was already breathless about your pain and perseverance. Really remarkable story and writing, Jeannette. Thank you.
Oh I don't know how you can even talk about it! This is a heck of a telling.
i'm very quiet, jeannette, wondering on the face of grace. i don't call it god either, not really, or only for lack of words, and i don't believe it is a conscious embodiment, but more the whole, the all, perhaps all of consciousness and all of unconsciousness, but that thing which exists that we sense, and in moments, which says, i am grace, we are grace, be here, be a part of grace.
your story is overwhelming. your strength and beauty - something i might learn from.)
xo
erin
Wow, this is really amazing. And so honest and powerful.
You are a survivor - what a tale. Perspective is always useful when one is feeling sorry for one's self. Thanks for the view from the battlements.
I was sitting here feeling more than a little sorry for myself so I hunted up a post I thought I had seen before life pushed me away from the blogosphere. This was that post, and as inspiring as I had thought.
Thankyou.
What an incredible story and thankfully you found grace at the end. I can't imagine what was going on in your family and for you to have all those surgeries. Blessings
Wow. I am overwhelmed by your responses to this. Truly, I did not expect this.
Spinal cord damage is a dicey thing. And over the years of battering as a child, the damage perhaps was so far-reaching that only now is it entirely catching up with me.
I have not thought that the number of surgeries was all that amazing. Often people with extensive spinal injuries have multiple operations and I was hospitalized with people who had had a dozen surgeries at times. Different perspective I guess.
As my final comment on this entry, I have to say that I am realizing just how traumatic some of this truly was. Psychologically, prolonged hospitalizations do something odd. I never really looked at it all this way, to truly try to tell the stories in a meaningful way.
And the writing is revealing certain uncomfortable truths, as well as some terrifying times. Too many near death experiences, and one stay that was not as long, but that was a horror show for me. The next to the last of the eight biggest surgeries.
So. I leave you all again with my thanks. Sometimes it feels as if the health journey is a book. Losing my child is a book. Finding my way since divorce is a book.
ONE of them has to be written and finished. Hence I've been absent a bit.
This is a horrific tale; many a lesser spirit would have given up and left this earth for good.
I have had many hospital stays for serious illness, but I've never been strapped down and I've always had the support of my Beloved. And I've never been an in-patient for more than two weeks at a time, That was bad enough, I can't even begin to imagine the horror you endured.
Darti hoon aapka jara sa
bhi naraz ho jaane se, play bazaar
Play bazaar
satta king
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